I know, I know, I was told not to by the doc. However, it's been a week and a half, and I NEED to know if he's making any progress. I pleaded with Mike to weigh him, and he finally let me. I know I need to stop this, but I am very worried about his lack of appetite and eating.
Well, he hasn't gained anything yet. We struggle just to get ONE of the doses of Durocal in him, never mind five of them. We've taken a lot of suggestions and tried them with little to no luck. My biggest fear at this point is that he will need to be hospitalized with a feeding tube to try to get him over this hump. I can't begin to explain how it feels to have no control over this, because we can't force him to eat, (well we could, but then we'd have to pay for the therapy bills later!:)
I truly hope that with this nice weather coming, the fresh air and outdoor activity will spike his appetite and we can put this fear to rest. On one hand I wish it would just come to a hospitalization because then at least we might begin to move past this. But then I think about having him in there with a feeding tube...and just the thought brings tears to my eyes.
The good thing is that he still seems to eat more at other people's homes. This leads me to think we already have a stigma with eating at our house...that will be hard to overcome since over 80% of his meals are here! Well, keep praying.
Wednesday, March 29, 2006